It was a relatively laid back day. Snow at home, some snow mixed with the slush and rain here, but nothing sticking. We still had Joe, and Erika, and Joe and Dan here visiting. They played some board games with Amelia, and Erika went on a scavenger hunt with Erika. While they were doing that, I took to time to make a key for the Scavenger Hunt pictures for the volunteers at Ronald McDonald House East. I have heard kids ask them a few times "do you know where this is?" and their response was usually "No, I wish we had a key..." so now they do.
I got out for a 3 mile walk during a sun break, and that was nice. I even got to spend a few minutes enjoying the sunlight. Once I got back, we watched a little Olympics, and then went down to dinner. Amelia was starting to express that she is starting to miss eating. This is a good sign because she should be at or almost at her goal weight, and the next discussion is when she will be ready to eat again... Desire to eat is a big part of that. We will meet with Dr. Moshtel tomorrow and hopefully get an idea how they feel about this at that point.
We still have some hiccups dealing with a 6-year old girl. We have to be careful NOT to be overly lax with her because of what she is going through. She still needs to behave, she still needs to answer us and help out. For the most part, she is pretty good about this, but some times, some times, she is a 6 year old kid...
The best thing is we are seeing our little girl again. She is full of energy, bouncing off the walls, smiling, playing, being creative (the women of Chick Flick will be happy to know she created a Peacock this evening because she LOVES her stuffed peacock so much). Though, on the down side, the very headstrong and sometimes argumentative little girl (that is ALSO our little girl) comes out again... I guess we take both together.
So, tomorrow starts week 3 of clinic. We have parent support group tomorrow morning, and a meeting with the doctor tomorrow afternoon. Hopefully, we will get an idea of how close we are to the next step at that point. Then, Wednesday, we have our meeting with the family therapist, and our meeting with the nurse as a follow-up to how Amelia is doing from a vitals standpoint.
As we head into another week, I would just ask for prayer that Amelia is ready to start eating again soon, that we can start the transition from the feeding tube to full eating again, and once that is accomplished, we can head home. I would love to think it might only be another couple of weeks, but it might still be a month or more... Pray for patience during this time, pray for strength for us to not start pushing for results sooner than Amelia is ready. I think the hardest thing is to NOT get our hopes up and just wait on the Lord and His timing. Thank you for the support, the prayers, the visits, the notes and letters. It is all so much appreciated.
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