Day 14 - Pretty as a Peacock

Today was our final day of Parent Toolbox meetings at Kartini, and tomorrow starts a more regular work schedule for me...  I have a built-in alarm clock too as Amelia's food pump goes off between 5:10 and 5:40, depending on when she falls asleep and we get her feeding started the night before.

I will miss the morning meetings, getting to talk to some of the other parents, but we will still have weekly parent support group, meetings with the doctor every two weeks, and meetings with the Nurse and the Family Counselor every week.  Still lots of interaction, and time with Amelia around Ronald McDonald House, and weekends, and very little if any time to just get away and do something we might want to (for either me or Katherine).  We are both tired and frazzled and trying really hard to give Amelia and each other grace.  It is just hard to do sometimes.

I got an e-mail this morning from one of the volunteers at Ronald McDonald House.  The night before at the Valentine's Party, they had taken some pictures, and some were of Amelia decorating a cupcake, which she then gave to me because she couldn't eat it just yet.  The pictures turned out beautifully, as of course they would.

And today, after Amelia got home from clinic, she had a package waiting for her.  It was ANOTHER great reminder of why I love disc golf.  Amelia's VERY first tournament last year was the largest women-only tournament in the world, right in the Portland Metro area, called the Chick Flick.  It is run by a wonderful group of women disc golfers in the Portland area, and was just a blast.  When they heard about Amelia being here and what she was going to, not only did they share Amelia's GoFundMe on their Facebook page, but they sent Amelia a stuffed animal of the signature animal of the Chick Flick tournament, who Amelia has named Feather.

These women are just the best!  Amelia loves the peacock (and I do too!  It is beautiful).  It was such a bright spot for her today.

There have been so many letters, cards, packages, small and large, sent here to Amelia, and we appreciate every one of them.  Sometimes it feels like the room gets a little cluttered, but then we see the love and care everyone has included in each of these.

Her friends from St Rose School sent her Valentines, both as a class and some of them individually.  Her friends from church put together some activities for her as well as a bunch of Valentines for her as well.  My Grandmother put together a card and small activities for her.  Her Aunt Erika and Uncle Joe sent her some things to do.  Dynamic Discs Dyemax printed a disc just for her and then they all signed it.  We have a windowsill of cards and flowers and little notes and such just letting Amelia know she is loved, missed, and prayed for daily.  Whether she knows how much it means or not, we do, and we appreciate everyone who has taken the time to help brighten her day.  Thank you all.