Sunday, March 4, 2018

Day 31 - Back to Bedlam

This morning, Katherine I got to wake up in our bed, but home didn't feel quite the same because Amelia wasn't there.  It was a sad thing, missing our baby girl.  But we got to come back to her this evening.

But, our weekend.  The saying "when it rains, it pours..."  Yeah, that is so true.  Friday night, we get home, and we through a load of laundry in.  It gets to the dryer, and the dryer starts to make a terrible squeeking sound... We have heard this sound before, when the dryer drum bearing is going out.  We replaced it once before...  The dryer is 10+ years old, and would cost us around $300+ for parts and labor to fix it, or we pay a little bit more, and we are getting a new one from Home Depot with a 3 year warranty.  Frustrating because now is NOT the time we really wanted to be making a purchase like that. 

Add on top of that this morning.  We were packing up, getting ready to leave, and Katherine mentioned dripping she had been hearing.  I thought I had heard it too.  Also, Amelia's room seemed REALLY humid...  Well, our water heater is in a closet off Amelia's room, and when we opened it, there was water in the pan, and water dripping from condensation on the ceiling.  I am HOPING this is just from the water heater venting and not being properly plumbed to dump the water outside, but if we have to get a new water heater as well...  That was a frustrating bit about today.

On the up side, we got to go back to our church at the Grove campus and see many of the people who have been praying for us and supporting us during our time down here.  It was great to see the love and concern of these people, coming up and asking how Amelia was, asking how we were, getting to tell our story and explain where things are headed.  It was a comforting feeling.

Then, we headed back.  We stopped off for lunch, but then got back to Ronald McDonald House in the early afternoon and let my mother head home, released of her grandma duties for the time being.

So, where ARE we right now, in terms of Amelia and recovery?  Right now, this is what we know.  Amelia has been improving her eating rapidly over the last week and a half since she started eating, and in the last 5 days that she has not been getting tube feedings.  Tomorrow, the clinic will most likely entirely remove the NG Tube, which I am very much looking forward to (though Amelia is concerned it will hurt, and it will a little, but she will be much happier afterwards).  From there, the clinic had talked about possibly discharging us as early as this week sometime.  Katherine and I have discussed it, and we wanted to at least wait until a week from tomorrow, so she can have 2 weeks off of tube feedings to get an idea of how well Amelia is actually eating.  I think they will be okay with that.  But, if that is the case, then a week from tomorrow, we might be getting ready to say goodbye to Kartini Clinic and Ronald McDonald House and return to Kelso and our houes and dogs, and our life.

Thank you for the prayers, the support, the love, and the family.  All of you who have sent cards, asked about Amelia, come by to help cheer us up, help us break up the monotony, and just help us get through, it has meant so much to us.  This has been a life-changing experience in so many ways.  Not everything starts out as a "good" thing, but through the grace of God, He turns them all to His purpose and guides us through them.  Thank you all.

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